What will I share this week?

This is a month of changes. My husband will undergo knee replacement surgery this month. We are thinking his years of playing catcher in baseball and then doing the breast stroke among others on swim teams for many, many years contributed to the destruction of the cushioning in his knee. He is walking the dog and riding his bike with bone on bone at this point. Two meniscus repairs did not help either! They took measurements through his CT scan to fit the replacement parts with more accuracy than was available in years prior to this event.

We will doing all of his recovery at home. It is somewhat amazing after watching the video in the surgeon’s office that they think this is so advanced and safe that I will be his caregiver! Watching the video we both realized this is no little thing they will be doing to him. They also informed us that he will be up and walking immediately after surgery. Yes, he will need a walker or crutches for stability, but he is expected to walk regularly the day of surgery and thereafter. None of this lollygagging around in bed!

Evidently the surgery has made huge advances in the last 20 years and our particular surgeon is extremely careful. Bob will even be using a nasal antibiotic before the surgery as well as antibacterial body wash, etc.

There is a new pain medication on the market called Journavx. “JOURNAVX is a prescription medicine used to treat adults with moderate-to-severe short-term (acute) pain.” Evidently if works through the peripheral nervous system which is outside your brain and spinal column. This is used instead of opioids. According to our surgeon patients are recovering faster and not having the side effects and addiction risk of opioids. If nothing else, this will be a grand experiment in the effects of as Bob calls it, “Better living through modern chemistry! “

He has nice legs, but not like hers!

We practiced Bob getting in and out of the car with the immobilizer brace on his leg. He has to wear this any time he is up and walking until Physical Therapy releases him from it. They warned us he might have to use the back seat for the ride home. Yep! It was way too difficult for him to maneuver into the front seat. Hopefully that will not become his usual place to ride in the car! He is already unhappy at being told he may not drive for 4 weeks. The surgery is on his right knee. He told one friend he is going to put the number for Uber in his phone. He is not good at just being at home. I figure by the time he gets in and out of the car for physical therapy and doctor appointments, a nap at home might sound good! The heat has been getting both of us down.

Equipped with a leg immobilizer, walker, crutches, cane, a list of medications and printed schedule for taking them, the electric ice machine, leg compression stockings, (oh my I will be busy, won’t I?) we are prayed up and almost ready. Wednesday August 27 at 7 AM is the big day! So many people who have had the same surgery speak of how nice it is to not be in pain anymore. We have been told that the first two weeks are the hardest. I will be rearranging my schedule to accommodate his needs. He had so often been my caregiver. After almost 55 years this is not a burden or unexpected. He is the love of my life and I want him as comfortable and healthy as possible. Of course, I might have to tie him to a chair at times to get him to rest, but then I might also have to chase him around the house with the threat of a fly swatter spanking to keep him moving. Just kidding. I think?!?

There was a saying that after forty you just patch, patch, patch. I think after seventy you just crumble. Thank God we have access to so many kinds of fixes!

Walkers, Canes and Assistive Devices

Modern society has created a myriad of ways to help us stay mobile while we age. At the Convent there are many Sisters who need those devices to get around. Father David Pfaff has visited the Convent often as a fill-in priest to do a service when Father Tom must be away. This weekend as retreat leader he said he spent more time with the sisters than in the past.

He decided to scrap his Sunday morning homily to speak on what he observed while among the sisters, oblates and associates. Sadly, the sermon was not recorded and he did not make notes for it. It was so anointed and such a blessing to those in attendance! One sister who had seemed serious all weekend broke out into a beautiful smile as he spoke.

Later, I asked him via email for his notes. This is what he sent.

“In a nutshell, walking assistive devices are visible reminders that we all need God’s grace to support in our lives, and watching the sisters manage their walkers in a way that I believe shows something of what God invites us to in the ‘great divine dance’ which is God’s grace and love for us.”

As best I remember, he pointed out that the devices are like a sacrament, “an outward and visible sign of an inward invisible grace.” God supports and aids us in our journey. For some the walker has a seat and a storage box. Some have large wheels, others small ones. Some have places to lean the forearms. A few have fabric laced with ribbon over the front of the frame. Rather than resenting and disliking the walker, we can embrace it just as we embrace God’s care for us.

That is a minimal sketch of his delightful talk. As I recall he also mentioned that he was impressed by how Sr. Hope assisted Sr. Marion when she moved from her walker to her chair. He noticed how each of us yielded to the ones with assistive devices when it came to a narrow path.

I once heard someone refer to her walker as a cage. That is sad. I hope this entry might help even one person re-frame the walker assistance idea. Yes, the walker surrounds with bars and handles, but for a good reason – support. I pray that when it comes time for me to use an assistive device such as a walker I can remember it as David Pfaff painted this lovely portrait last weekend.

Awoke Singing This

Some days I wonder do my dreams and worries inform my first thoughts upon waking up or is it all under control of the Holy Spirit?

For a few days I have recurrent thoughts about the cardiac surgery they say I will need sooner rather than later. Part of me wonders what if I do not have the surgery? All of that runs underneath the day to day thoughts.

My daughter’s mother-in-law died yesterday. Evidently she was sitting on the side of her bed, getting dressed. It appears she had a stroke? She fell backwards and just lay down on the bed. She was a catholic woman who lost her husband and her mother. While hospitalized a few years ago she was tested and doctors decided she had lost some of her executive reasoning abilities. She had to move into a retirement community. She did not like it very much, but there were so many things she did not like very much! May she rest in peace.

My husband, Bob, had recently taken her to Frisch’s for lunch, always her first choice. She had just seen her family for a celebration Easter weekend.

What does all this have to do with me? Margie was ten years older than I am. My death became a poignant fact with the aneurysm diagnosis last January. No one know when the Lord will call us home. Only God knows the day and the hour.

This morning when I awoke some of the lines from this song were rolling through my brain. Took me a while to wake up and capture it. This is a Catholic hymn based on several Scriptures. I chose to share this version because it provides the lyrics.

I have listened to the song several times this morning. I would be lying if I said that took care of any disquiet I have from the aneurysm I carry with me. NOT. The next scan will be a CT scan in August to determine if the thing has grown. Cardiologist will determine when to refer me to cardiac surgeon. Until then, as I do daily, I must trust in the Lord and walk in obedience to all I am asked to do for the Holy Trinity.

Bob jokes around about cremation which we both have chosen instead of burial. The funeral home down the street has been busy for the last year building a huge garage looking thing on the adjoining lot which they purchased. I called them this morning and yes, indeed, it is going to be a crematorium. The dictionary is so uncouth.

Crematorium: A furnace or establishment for the incineration of corpses.

He cracks a joke every single time we drive past, which is practically daily! I wonder if he thinks the same things while he is alone in the car? I told him he needs to stop or I will have weird flashbacks if he dies first. Yep, at our age these discussions occur with some regularity!

I chose cremation because I do not want any chance that I will get this body back in the afterlife. God knows the wishes of my soul. I told the funeral director I want the box the casket comes in, not some expensive casket.

Yep! There it is plain brown cardboard 🙂 from https://www.thefuneraloutlet.com/product/brown-cardboard-coffin/

I write all this as my daughter and her family go to the funeral home today to make arrangements. I have no idea if Margie had pre-planned her funeral. I hope so. No one wants to make all of those decisions while grappling with grief. Again, may she rest in peace.

Can You Relate?

Many women in America suffer from body image disgust. I came across a photo from when my kids were little. We were at a beach and I was in a swimsuit. I can remember seeing myself in that swimsuit and thinking at the time how I needed to lose weight. Looking at it now, “NOT SO!” I had a great figure.

Are there things about yourself you do not like or accept? When the diagnosis of aneurysm came I started to think my body had failed me. Yet, someone mentioned to me that one neurologist believes that this flaw in a blood vessel may have been there since birth and gradually weakened and enlarged over time!

There is great power in accepting things as they are, not wishing our lives were different as much as adjusting our expectations to how things truly are. One powerful book teaches that concept. “Radical Acceptance” has helped me avoid unnecessary suffering by coming to terms with reality. Tara Brach teaches, similar to Brother Lawrence, that we should cut short the negative thoughts and go for the ideas that move us forward.

And I said to my body, softly, “I want to be your friend.” It took a long breath. And replied, “I have been waiting my whole life for this.” Nayyirah Waheed

Isn’t that quote a lovely word picture? Are we willing to befriend our body and do whatever is necessary for the best care we can give it? One man I know is reluctant to participate in physical therapy. When PT is prescribed there is something we need help working on to get us to the best place possible.

I could list a thousand ways these ideas apply. You likely know your own ways. So try to befriend your earthen vessel and inhabit it as best you can, giving the best care you can.

Recently we were given tickets to see the Wizard of Oz ballet. What a treat! I was reminded as the Scarecrow wanted a brain; the Tin Man pined for a heart and the Cowardly Lion was desperate for courage, how I likely have all the things I need for my journey on earth. The Wizard showed the Tin Man, Scarecrow and Lion that they had already shown heart , brains and courage on the journey with Dorothy.

His divine power has given us everything we need for a godly life through our knowledge of him who called us by his own glory and goodness. 2 Peter 1:3 NIV

Our God is more mighty than any pretend Wizard. He has promised and given us everything we need, as Peter wrote, for a godly life. Why should we belittle and denigrate what He has created? We ARE His workmanship. Thankfulness will get us further than shame and negative thinking. I pray you will go forward in this life thanking the Lord for how you are created.

For we are his workmanship, created in Christ Jesus unto good works, which God hath before ordained that we should walk in them. Ephesians 2:10 NIV

But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. 2 Corinthians 4:7 NIV

Chonda Pierce used to say this verse shows that we are all crackpots!

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Uncertainty

Many world religions teach us the importance of learning how to live with uncertainty. Most of us are not very good at it! I read this quote recently from Gratitude. It hit me right where I have been living.

Peace is an invitation in daily life to breathe deep, right here, in the uncertainty. Morgan Harper Nichols

Learning to live with the knowledge that I have a large aortic aneurysm has been difficult and very unsettling. Knowing my God calls me to a life of peace has me wondering how to tap this particular dance. (My sister took tap lessons, not me. I remember her reciting shuffle-ball-step.)

My Internist convinced me that I cannot continue to live in this high state of stress. Doing so for 2 months has caused a massive, ugly fibromyalgia flare. Fibro is a nasty condition addressed in other blog pages. Suffice it to say my body became a train wreck.

I began returning to some of the best teachers I know regarding good mental health. Rick Hanson.net has many resources from this renowned Psychologist. One of his books came to me by way of my sister. I passed it along to my granddaughter. Now I am buying another one for myself!

Resting in Calm Strength: When you recognize that you are basically all right in the present moment, you can release unnecessary anxiety. This isn’t about denying real threats or challenges but rather about not letting anxiety run the show when you are, in fact, safe.

I have prayed and asked the Lord for help with all of this. Deliverance came with realization that this aneurysm may have been present for decades! Now that we are aware of of it, doctors can monitor and treat it. Yes, I very likely will need open heart surgery at some time in the future, but I am in fact all right now.

This is not to say I will remain calm and full of equanimity when the time comes to book that surgery. It just says I can cope in the here and now – this moment – without dwelling in that high anxiety constantly. Perhaps with practice I will be able to face the surgery with peace and calm? The hard work of re-framing all of this plus the three blood pressure medications they have me on seem to finally be bringing my blood pressure down. Now, to maintain those lower numbers!

It has been difficult, but not impossible to let go of those aneurysm thoughts. With practice and diligence I have been able to lay most of them aside. I realized browsing though Hansen’s webpages that I had used the old, ugly habit of rumination with the aneurysm. Rumination is based on negative, obsessive thoughts and it drags me down to the lowest places. Here is a blog entry I wrote about it in 2022. https://treasures-in-plain-sight.org/2022/07/21/rumination/

So I have signed up for his 5 week course entitled Breaking Out of Rumination. Dr. Hanson says that rumination “is very normal, and problematic in the extreme.” I am looking forward to getting a handle on how to stop myself from this habit. I likely learned it from my family of origin – that inability to let something go – just hashing and re-hashing it over and over again. Plus, more good news, when I actually went to sign up the course was half-off!

My writing may drop to 4 blogs a week as I put more work into preparing the poetry for publication. I am also pulling blog entries to try to organize into booklets for publication. Yes! I found an editor and now need to apply myself to the new work of compiling, editing for my part, sending them to her for edits, revising, preparing for publication, open an Amazon self-publishing account, etc.etc.

That certainly gives me other things to think about. My Internist encouraged me to put my focus there!

You will keep in perfect peace
    those whose minds are steadfast, {staid on Thee}
    because they trust in you.
Isaiah 26:3 NIV

TV Humor and At Home Humor

Do you ever watch All Creatures Great and Small on PBS? This season there is a baby involved in the family. (There are several different babies playing the part if I am not mistaken.) This one child has a giggle and laugh that cracks me up! There is a toy with a jingle bell on it that seems to be his trigger. They are fortunate to have this child on the show!

They did not capture his giggle for this clip. Our loss! They did confirm though there are 5 babies!

Certainly you have heard of the song House of the Rising Sun? Our home has become House of the Moans and Groans. The medication side effects for me include increased muscle pain: think arms, legs, back, ankles, hands, upper arm, it just goes on and on. Bob had a rather severe hamstring injury several weeks ago. He did not detach the hamstring from the bone, but has been in lots of pain. The steroids they put him on brought a whole new level of suffering. As the sun begins to set we both grow weary from fighting off pain and stiffness. Then the oompah-pa-pa band begins.

Each beat of the rhythm brings one of us going “Ooh” or “ouch.” Grunt, moan, gasp. “How did we get to this point,” we ask each other? Seems we were just meeting and dating and falling in love. Then we shuffle off to the bathroom and come back to watch another evening recording.

Laughter truly is the best medicine! We just celebrated our 55th Valentine’s Day. This is the card I gave Bob.

Yep, I have been a grump. Trying not to take things out on him, but still grumpy.

The good news is we have booked a flight to visit our neighbors who are “snowbirds.” Since surgery is not imminent we decided to take off. A few days out of here will do us both good. This will be our first experience with Allegiant Airlines. Will let you know how it goes!

Down south they live in Clearwater, Florida The airport is abbreviated PIE. Hoping we can find some pie while we are there! Or at least a conch shell for our grandson.

Ompah-pa-pa. Oompah-pa-pa. Keep singing your way to laughter!

Gosh! Where is My Brain?

Saw this boiling mud pot in one of the national parks. That is pretty much what my brain is like these days.

I find it amazing that our physical being can cause such major distraction! The things done routinely are forgotten. The people who love us best might not be kept in the loop. The side effects from these drugs to lower blood pressure are kicking me to pieces. Plus it does not seem to be coming down and staying down consistently. It is lower, now to get it to stay there!

I forgot to update my 92 year old friend about my health. That is the same woman who prays for me and my family daily. I felt so bad. I have updated many people via text or email. She does not do either. I totally forgot to call her.

The ice on the front walk built up without me even considering putting a chemical on it to help melt it away. The night temperatures in the teens has kept our shady walks from thawing. Hopefully it will all melt away this week now that we are out of the freezing temperatures!

Usually I gather ideas all week long for what to blog about. Not so this week! Haven’t a clue what direction to take this week. Last week I shared some of my stories from over the years. Maybe continue that theme?

As I fight my way out of the mud I wonder how I will ever set aside time to work just on gathering and editing materials for publishing? I am excited by the prospect, but stymied by this brain fog.

As I listened to music while writing this song by Stephanie Gretzinger came up. I do not remember it, though I placed it on my playlist! Thank You, Lord for the reminder that You are able to keep me.

24 Now unto him that is able to keep you from falling, and to present you faultless before the presence of his glory with exceeding joy,

25 To the only wise God our Saviour, be glory and majesty, dominion and power, both now and ever. Amen. Jude 24-25 KJV

My Heart

Finally saw a cardiologist after the Cardiac MRI. Decided to go with The Christ Hospital group. One person in the know calls them the pinnacle of heart care in Cincinnati.

The diagnosis is as follows: Aneurysm of ascending aorta without rupture, aortic valve regurgitation, mild concentric left ventricular hypertrophy. The aneurysm measured only a tiny bit smaller with the MRI compared to the echo-cardiogram. The aortic aneurysm will eventually need to be addressed with surgery, likely 6 months to 2 years.

The plan is to test again in 6 months with a CT Scan. As a precaution, they will also do a Vasi-pad screening for abdominal aneurysm, too.

In the meantime, one drug was doubled. Blood pressure is coming down but not where they want it to be maintained. The side effects from the three blood pressure medications are giving me a fit. Fatigue has my eyelids now wearing garage doors inside of lids. Remember what the garage door sounded like before electronic closers? Yep, that rumbling in my head says I might want to fall asleep now! Muscle pain down my arms, legs, ankles, forget it – just think body-wide. The only solution has been to raise another drug that, you guessed it, makes me sleepy, too!

So I will be at home working on the writing and trying not to think about cardiac affairs. It is so strange that high blood pressure and aortic aneurysm neither one produces symptoms. No visit to the hospital planned for a few months anyway!

I am grateful the medical professionals have found this situation. I am trying to be grateful for these many medications. I intend to keep on writing and praising the God of our fathers. Perfect peace is only found there!

Worm

Do not be afraid, you worm Jacob, little Israel, do not fear, for I myself will help you,” declares the Lord, your Redeemer, the Holy One of Israel. Isaiah 41:14 NIV

I spent many years in Bible study reading commentary by Mathew Henry. He has helped me with difficult passages and furthered my understanding with passages. Henry teaches strongly about humility and I think he is right to do so. We are slow to take the lessons about humility, and too often think too highly of ourselves, blinded by pride and haughty attitudes.

Commenting on this Isaiah passage Matthew Henry wrote: God speaks with tenderness; Fear thou not, for I am with thee: not only within call, but present with thee. Art thou weak? I will strengthen thee. Art thou in want of friends? I will help thee in the time of need. Art thou ready to fall? I will uphold thee with that right hand which is full of righteousness, dealing forth rewards and punishments. It is the worm Jacob; so little, so weak, so despised and trampled on by every body. God’s people are as worms, in humble thoughts of themselves, and in their enemies’ haughty thoughts of them; worms, but not vipers, not of the serpent’s seed. Every part of God’s word is calculated to humble man’s pride, and to make him appear little in his own eyes. The Lord will help them, for he is their Redeemer. God has provided comforts to supply all their wants, and to answer all their prayers. Our way to heaven lies through the wilderness of this world. The soul of man is in want, and seeks for satisfaction; but becomes weary of seeking that in the world, which is not to be had in it. Yet they shall have a constant supply, where one would least expect it. I will open rivers of grace, rivers of living water, which Christ spake of the Spirit, John 7:38,39. When God sets up his church in the Gentile wilderness, there shall be a great change, as if thorns and briers were turned into cedars, and fir-trees, and myrtles. These blessings are kept for the poor in spirit, who long for Divine enlightening, pardon, and holiness. And God will render their barren souls fruitful in the grace of his Spirit, that all who behold may consider it.

Henry considers our position as worms as God sees us. Isaiah calls us “little Israel” not mighty nation. He is not trying to belittle us but call us to right thinking. We are the little lambs of the Mighty King.

Amy Carmichael wrote in Rose from Brier, chapter entitled Worms. “There is a feeling I( can only call it worminess) that can come, between 2:00 and 3:00 in the morning, when all the fight seems to be drained out of us  It is really a very horrid feeling, but the word of our God is equal to anything- even to this. At such a time, clear through the fog and stuffiness and the oppression of the enemy, the worminess, came this Fear not, thou worm!

“It was startling; it was so exactly it. There was no smooth saying that things were not as they were. They were wormy. I was wormy. Well, then, “Fear not”; He who loves us best knows us best; He meets us just where we are.   But He Does not leave us there. There is power in the word of the King to effect what it commands. In the Fear not of our God (a word repeated in one form or another from Genesis to Revelation) there is power to endue with what at the moment is most lacking in the one to whom it is spoken, be it courage, or the will to endure and to triumph which so easily slips away from us, or the love that we need so much if we are to help others, the love that never fails, or the wisdom which is not in us, and which we must have if we are to make right decisions, or just common hope and patience to carry on in peace and joyfulness of spirit. O Lord, I am nothing before Thee, a worm and no man.”

Here is an audio of the passage from minute 1:23 to 3:07

The photo below brought forth guffaws of laughter from me early one spring. The birds had made a mess of the office window. I went outside determined to clean it off. When I looked down, trying to be careful not to crush the crown of a fern, I saw this worm moving. It was almost the exact color of the spent fronds. I hurried to get my phone to snap a photo. It had emerged from the center of the crown and was digging its way back into the earth.

Isn’t the camouflage amazing? Had it not moved I would never have seen it!

I am God’s little worm. The Godhead has promised to provide courage, the will to endure, power to triumph which is sorely lacking in at 2AM. The promises are there for love and wisdom, hope and patience and fortitude to carry on in peace and with joyfulness of spirit.

Rest in the Presence of this holy Trinity and absorb what you need to carry on. I am now taking three medications for hypertension and the side effects are lousy. For me, perhaps the worse one, is increased muscle pain. Fibromyalgia already makes chronic pain an ugly companion of mine. These meds seem to trigger it to a more potent level. So I am resting in God, crawling through the mud of side effects, and awaiting the medical plan for my next step. I am trusting in the word that says my Redeemer will help me. I hope my appearance, like that little worm, might bring someone surprised laughter!

Curiosity For Survival

When our kids were about to leave home I was very saddened to have that part of our lives end, change, whatever. Many people asked if I could just be excited to observe who they would become. Eventually I did get excited to be an observer of their lives.

Lately I was reading in The Book of Joy about survivors of the holocaust. Edith Eva Eger said, “The only thing that kept a person alive was the acceptance of the reality of one’s existence and the attempt to respond as best one could. CURIOSITY about what would happen next, even when she was left for dead in a pile of bodies, was often all she had to pull herself forward to the next breath. When we accept what is happening now, we can be curious about what might happen next. Those who could remain curious had the best chances of surviving. Can I accept that this is really my body that is being discussed in terms of cardiology and possible surgery? Curious. Hmm. Can I become curious about where all this health stuff is going? That might also help with survival from the stress!

So many people say to me “I just know you are going to be all right!” Sure hope they are right! This is the most troubling medical news I have ever had. Can I stay curious regardless of the news going forward?

I like the artwork of Mary Engelbreit. This year I asked for another page-a-day calendar by her. I had no idea how much I would need her collected wisdom and encouragement! This was the image shortly after I read the quote about the survivors of the concentration camps.

If you have ever waited for results from medical testing, or for the actual tests, if it was a long wait, you might have run into boredom. Isn’t the quote above so true? I want to remain curious about my health and well-being. This is not the Cardiology world of 1961 when my father died from repeated cardiac events! I remember when Dr. DeBakey developed the artificial heart. I was so delighted for the patients and families and so sad that it was too late for my Dad. Today the idea of replacing an aorta is not thought of as a big deal, (except by the patient)!

So yes, I keep reading and trying to educate myself as to the possibilities for repair, replacement, survival, etc. The survival rate from aorta replacement surgery is good. As long as they operate before a rupture (sometimes called a dissection).

As you can read I am a little obsessed with the topic. When it is your body you can put your head in the sand and hope it goes away, or find out as much as you can to make a reasonably sound decision when the time comes.