My friend and I both have this auto immune condition called scalp plaque psoriasis. It is a scaly itchy condition with lumps on the scalp. I swear I feel like a @#*(&#@% monkey. I scratch unconsciously because it itches almost every waking hour. I have even woken myself up scratching in the night. The warning is not to scratch as that can make for hair loss. When one itches like this the warnings mean nothing.
Not only do we itch but we also shed these overgrown skin cells. Don’t think dandruff, think heavy snow storm. Nope there is no cure. There are some prescription remedies that try to tame the symptoms. No cure. Oh, I remember! They are PRACTICING medicine on us. We are the practice subjects, along with 7.5 million other Americans. yikes.
Snow Squall
I read my iPad mini in bed. Sometimes I am too tired to put it away in the drawer and simply slide it under my pillow. When I got up this morning I heard a slide then bump. I looked in the drawer. Nothing in there. I moved my pillow aside to make certain I had not missed it. Then I saw the blizzard of skin cells on the dark blue sheet. Yuck. Sure enough, the iPad had been under my pillow and slipped off the end of the bed. I got down on the floor (a feat in itself!) but I could not see it. The dog wondered if I was doing morning stretches like she does. I call her Slinky Dog. I got out the bedside mini flashlight. There it was. Had to find the extension picker-upper thingy. Got on the floor again and retrieved the iPad. Finally, I went to the front closet to get the sweeper.
I have heard it said we should vacuum our beds several times a year because each of us shed skin cells, but this was ridiculous. I suppose there is a snow storm headed to my bed every single night as this condition continues. She recently commented how badly she needed to vacuum her black car seat.
I brush my hair and there are snow squalls. At times, white out conditions!
I am not entirely hopeful the dermatologist can bring this under control. And now, sadly, I have it on my ear, too. Never. Ever. Ask what else can go wrong.
LORD, I need patience and now would be a really good time to send that! Amen.
He has a pink metal flamingo sculpture in his side yard, a large black eagle sculpture on his deck. The ridiculous and the sublime? The beagle and I walk on.
There is a huge dip near a stand of mailboxes. The landscapers were to repair that dip where someone really could stumble and get hurt. They sprinkled a little dirt at the edge and threw a few grass seeds. NOT what we had in mind!
One neighbor scared herself and the rest of us. She had surgery on her knee a few weeks ago. She was totally healed and good to go. Then she slipped on their garage floor and went down on that same knee and ankle. I happened along as she was standing in the side yard, obviously stunned, in pain and in shock. Helped her to the porch, got an ice pack, got her son to open the front door, we helped her inside to lounge chair, set up ice machine. She is okay, but was truly shocky for a bit there. Today she is walking the golden retriever and doing just fine. Whew!!
There is another neighbor who complains and complains about every body and just about every thing. Then she lets her mini boxer out in her yard. That dog never gets taken for a walk. And it barks. And it barks. And it barks. They also got a mini-something and it has learned to also bark, and bark, and bark. Wish there was a forum for barking dog complaints. I did post on neighborhood Facebook about law in NYC stating a barking dog can only stay out for 15 minutes. Grrr. I have been known to stand on my front step and in frustration after hours of barking holler, “Shut up!” Not kind, but at my wits end.
We have been enjoying Ohio tomato season at its finest. There is a farmer down the road who sets up his table by his driveway. Puts out a money collection box. Hangs plastic bags from a nail in the tree. Then he loads that table with some of the best tomatoes you have ever tasted. $5 for a stack of 6 large red ones. At times he has a ‘scratch and dent’ box or another price for gigantic tomatoes.
I take mine home and we enjoy hard boiled egg and tomato sandwiches with juices dripping down our hands. Or I make Caprese salad with fresh mozzarella and fresh basil.
Rolling and cutting Basil chiffonade
I could learn to make basil vinaigrette but I like Kraft basil vinaigrette. Pour it in a pan and reduce “until it coats the back of a spoon.” Yum!
Most of our neighbors are kind and considerate. We share baked items and ideas like the salad above. We play cards on occasion and greet each other warmly. One brought us fresh corn on the cob his son was given. Yum.
A few younger families have moved in and we are grateful to see and hear the children. (We old folks have so many bodily ailments to speak about.) Just like you cannot choose your family members, we know you cannot choose your neighbors! We try to develop the good ones and seek patience with the others.
What is going on in your neighborhood? Are you watching for treasures in plain sight? Enjoy the summer weather while it lasts. Before long we will be wishing for a hot day instead of the chill headed our way!
When it’s over, I want to say all my life I was a bride married to amazement.
-Mary Oliver
Have you read Mary Oliver’s writing? I love that image of “I was a bride married to amazement.” The LORD God Almighty has filled our world with truly amazing creations. I cannot fathom how a person can walk around with open eyes and not see the creation with amazement.
Almost 53 years ago I was a bride.
I was amazed at the wonder of my betrothed, Robert M Dutina. I was amazed at the goodness of God in creation, thus married in the park. I knew no building could contain the God I worship. I have continued to be amazed at all my life has been filled with. Both happy and sad.
Always, though, always I have been married to amazement.
Amazed at not only the nasturtiums above, but the next one, too!
One flower filled with sunshine and a glorious land snail in my very own side garden. The first year we were married we had a two track driveway outside our dining window. Someone had planted nasturtiums down the center. They have been dear to my heart ever since!
And just now! One pileated woodpecker flying over my front yard singing as it goes. Yes, married to amazement.
When Amazement asked if I would be married to it, I gave a resounding Yes!!
I have been noticing spider strings in the morning sun. These are not “webs” as such, more like hunting lines? I suppose the spider drops out of the trees because these begin high in the air) and drops down into the grass. The sun catches the gossamer line and glistens in my eyes.
Makes me wonder how all the birds frequenting our feeder miss those lines as they come flying in? We have decals and a blotter marker that leaves a residue that the birds can see so they do not crash into our sliding glass door. Does the spider have something like that in its silk?
I forgot to write about all this until this morning when I put the sprinkler on our clump river birch and then the new Mallow shrub. High heat this week and no rain in the forecast, ugh. Trying to unwind the hose and blech! a spider string was caught in my hair. Now I am wrestling the hose, (and I eventually turned the hose storage roller over on its side), trying to get the string out of my hair and remembering that I did not write about all of this.
In high school I did a science project with Becky about spiders. She was an artist and her family lived in a large house with an old stone basement. We sprayed a piece of cardboard with hairspray, captured a spider web . And repeated the process. Not all the captures were successful. We used the good ones as our displays to discuss the various kinds of silk a spider uses in construction.
Likely the most maddening encounter I ever had with a spider occurred at our last address on Siesta Drive. We had bird feeders (as usual) on our front porch. One day we came home from shopping and wondered how the hummingbird was holding this strange position on the porch.
Upon closer inspection, Grr! A spider had captured it and killed it. I was furious that our little friend had fallen prey to the natural order. Then I began to wonder what size spider could do that? I went inside to get the broom. Believe it or not I found that spider hiding along the edge of the porch. I drove it out into the open and beat it to death with the broom. Not exactly proud of that moment, but I felt justified at the time.
Silk so strong. Arachnid so mysterious. I am not afraid of spiders but like many people I do not like when I get their silks in the face. Walking a trail at the Nature Center I am always sort of relieved when Bob goes first and knocks the hunting lines away.
So with all my unscientific lingo but strong interest I guess I could have the title Citizen naturalist?
A man without God is trusting in a spider’s web. Everything he counts on will collapse.
Do you remember the childhood joke about the bathtub? “How do you know there is an elephant in your bathtub?” Answer, “You can smell the peanuts on his breath.”
On a recent trip to Rocky Fork Lake, Bob caught this shot of a heron wading in the bathtub of the Canada Geese.
How do you know there is a heron in your bathtub? The long legs and no splashing.
photo by r m dutina
Some things just make me laugh out loud!! Heron likely just wanted lunch. Maybe she was hoping the geese would stir up the fish?
We will never know for certain!!
And God said, “Let the water teem with living creatures, and let birds fly above the earth across the vault of the sky.” 21 So God created the great creatures of the sea and every living thing with which the water teems and that moves about in it, according to their kinds, and every winged bird according to its kind. And God saw that it was good. 22 God blessed them and said, “Be fruitful and increase in number and fill the water in the seas, and let the birds increase on the earth.” 23 And there was evening, and there was morning—the fifth day.
Genesis 1:20-23 NIV
And He knew there would be a woman in Ohio in 2023 who would laugh!
There is a saying, “After 40 it’s patch, patch, patch.” I have been saying, “After 70 we just crumble.” No joke. I was diagnosed last year with plaque psoriasis on my scalp. Now a friend has it, too. She even gets it in her ears.
Mayo Clinic says: Psoriasis is a skin disease that causes a rash with itchy, scaly patches, most commonly on the knees, elbows, trunk and scalp.
Psoriasis is a common, long-term (chronic) disease with no cure. It can be painful, interfere with sleep and make it hard to concentrate. The condition tends to go through cycles, flaring for a few weeks or months, then subsiding for a while. Common triggers in people with a genetic predisposition to psoriasis include infections, cuts or burns, and certain medications.
Psoriasis is thought to be an immune system problem that causes skin cells to grow faster than usual. In the most common type of psoriasis, known as plaque psoriasis, this rapid turnover of cells results in dry, scaly patches.
The cause of psoriasis isn’t fully understood. It’s thought to be an immune system problem where infection-fighting cells attack healthy skin cells by mistake. Researchers believe that both genetics and environmental factors play a role. The condition is not contagious.
No one ever wants to hear the words chronic and no cure in the same sentence about themselves. Well, here we are again! At least we know it is not contagious!
I mean crumble, literally. The plaques itch and I am told not to scratch them as that can lead to hair loss. Oh great! I could become bald, too? Because frankly, it is almost an unconscious thing to scratch these areas. And when I do scratch them, there are crumbs, not tiny dandruff flakes, more like actual crumbs of scalp that drop off. Just lovely. If you want to see photos look them up on your web browser. Too gross to post here.
An auto-immune problem. Whole other type of AI. Poop. Maybe we should turn the Artificial Intelligence bot brains loose on this one and see if they can develop a safe cure?
I realize this is not life threatening. It is not cancer, or leukemia, heart disease, stroke. Just a miserable auto-immune ailment with no cure. If you have this I wish you luck. There are treatments meant to alleviate some of the symptoms for some of the time. But the symptoms return. I hope you can get a respite from them.
I feel rather like a dog! More like a woman with her hand on her head, scratching, scratching, shedding.
Yet you, Lord, are our Father. We are the clay, you are the potter; we are all the work of your hand.
Isaiah 64:8 NIV
This is one where I will ask the Father, “What were you thinking?” Maybe like chronic pain it is meant to call me back into His Presence?
I heard a sports interview with Joey Votto yesterday. During the interview he said, “I’m homering.” I found that creative invention of a word quite amusing. Did he mean this?
This week for me holds appointment to get new orthotics and shoes. I do not meet the medicare criteria even though diabetic. Thus, the appointment will be self-pay.
Another appointment for physical therapy. Only opening was during my writing time Tuesday. Good thing I worked ahead!
Another appointment for check up with internist. Are you getting the picture?
We have a dinner to celebrate someone turning 82.
There is an ice cream social with another small group. Figure 20 some folks.
I have been taking Imodium AGAIN this morning. Fear to eat and headache that comes with that running to the bathroom. So back to Tylenol.
So far, Monday has brought a lousy week here.
But, who me? Complain?!? Yep, that’s me.
When my son was very young I was cleaning the bathroom one day and thanked God that I could kneel before HIS throne and not just the one in the bathroom. This week I likely have the cleanest ceramic throne on the entire street!
Grateful we have good medical care and can afford (so far) the things we need to pay for out of pocket. Wish doctors were not ‘practicing” on us and actually had some answers for some of this stuff.
Grumble, grumble old lady.
I am not as hearty as I think I am.
So how did it all work out? A week after I wrote the top part here is my report . New orthotics and shoes are on order. Physical therapy was not as painful as feared. I have done the exercises every day, so far. (Trying to be good for strength and healing.) At dinner for 82 year old I ate some food though not a good appetite. Regretted it the next day.
Saw the internist. He ordered oodles of tests. All the results came back normal. WHAT?!?! So what is the cause of all these bathroom runs? Might never know. He sent Rx for stronger than Imodium drug. Before I took even one dose it all stopped occurring. Thank You Lord.
Maybe eating a sampler (or flight) of ice cream flavors healed me? If only that were true!
So 2-1/2 weeks of the green apple quick trots and I am fine now. Truly. My friend with sciatic pain is still suffering. Bob’s lungs are enjoying clear air this morning after lightning storm moved through last night. They say we are to have rain storms today. Part of me is hoping so.
Pain since Thanksgiving in shoulder is not gone, but no longer consuming all of my attention. Lifting things carefully and trying to use it more than last number of months.
Tonight is Bob’s last meeting as an HOA board member. Tomorrow he works at the election. A draining week for him for certain.
John Eldredge reminds us in Resilient that these are this we are going through. Going through – not necessarily setting up housekeeping here. I am glad to know this in not my final home. I love that Scripture calls me an alien, a sojourner.
Dear friends, since you are immigrants and strangers in the world, I urge that you avoid worldly desires that wage war against your lives. 12 Live honorably among the unbelievers. Today, they defame you, as if you were doing evil. But in the day when God visits to judge they will glorify him, because they have observed your honorable deeds.
1 Peter 2: 11-13 CEB
Immigrants and strangers, just wish the locals would not share their green apple quick trots and other ailments with us! Okay, so it is a little out of context, but you get the idea I hope!